A qualitative study on the impact of bleeding disorders on the daily life of Dutch women

Abstract Background: Despite growing awareness of the need for better healthcare and research focused on women, sex-based inequalities persist, resulting in poorer health outcomes for women. Particularly, women with congenital bleeding disorders (CBDs) receive less care, are underrepresented in research, and experience diagnostic delays compared to men with CBDs, despite both exhibiting symptoms. Objectives: To identify lived experiences and care needs of women with CBDs. Design: A qualitative study, including focus groups and semi-structured interviews. Methods: Women were eligible to